tag:blogger.com,1999:blog-5858244081753004106.post5351585560734449711..comments2013-10-07T21:48:07.474-04:00Comments on Online Health Expert: Ectrodactyly or Split-Hand/Split-Foot Malformation (SHFM) or sometimes called the Lobster-Claw Syndrome or Ectodermal Dysplasia-Clefting Syndrome:- A Rare Congenital Medical Mystery.Dr. Harish Malikhttp://www.blogger.com/profile/04349540559236787445noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-5858244081753004106.post-15956603640913279452011-11-08T20:40:24.962-05:002011-11-08T20:40:24.962-05:00Dear Mr. Swancky,
I see the need for therapy for ...Dear Mr. Swancky,<br /><br />I see the need for therapy for the child and the family members as this condition can be quite painful and emotionally traumatizing for everyone involved. I don't believe it would be easy to have it authorized through the insurance. It would be worth a try.<br /><br />As you must have seen Dr. Anthony Atala has been working on tissue and organ regeneration and I am sure they will be able to literally print out hands and feet for someone suffering with this condition after the child reaches adulthood. However it might still be challanging to teach an adult how to use those new hands.<br /><br />Thank you for reading and leaving comment on this post.<br /><br />Sincerely,<br /><br />Dr. Harish MalikDr. Harish Malikhttps://www.blogger.com/profile/04349540559236787445noreply@blogger.comtag:blogger.com,1999:blog-5858244081753004106.post-469879692872552282011-11-08T19:07:03.678-05:002011-11-08T19:07:03.678-05:00Will parents of a child with this syndrome need th...Will parents of a child with this syndrome need therapy to cope with society and raising of this child?<br />Secondly we had a lot of doctors who were yacking about ongoing experiments where skin, bone tissue was being farmed in labs all over the place and they could fix my baby.<br />Then after some time, all that talk died away.swanckyhttp://new-moving-meditations.comnoreply@blogger.com